Government Oversight Mechanism
ASK plays a significant role in establishing norms and practices for the benefit of PWAs in Kenya and beyond. In this regard, it’s important to put in place oversight mechanisms through the institutionalization of mainstream normative frameworks and protocols for guiding, monitoring and evaluation. In this regard, ASK intends to play a key role in the development of:
- Albinism inclusive laws and policies and in particular,
- The National Albinism Policy and Action Plan.
Since 2011, the Society has played a critical role in establishing a special Government Albinism Fund through advocacy in parliament and its institutionalization thereof as part of the sustainability of interventions away from charity.
ASK developed a conceptual framework that formed the basis for the establishment of the National Albinism Sunscreen and Support Program (NASSP), that has enabled over three thousand (3,000) PWAs to benefit from free sunscreen, after-sun and lip-care products on a monthly basis.
The program provides for protective clothing, Skin Cancer treatment and eye-care services for PWAs. It also supports organizations of PWAs including ASK to carry out awareness creation activities and has also helped train medics on how to work with PWAs in over a hundred and eighty (180) hospitals across Kenya, including the provision of cryotherapy machines to help treat Skin Cancer and increase access at the grassroots.
However, there is no proper guiding national framework to ensure its sustainability, monitoring and evaluation. ASK therefore has initiated a process to help develop a National Policy Framework and Action Plan for PWAs, together with the National Council for Persons with Disabilities (NCPWD) and other stakeholders so as to not only properly anchor this novel innovative program but to also enable its monitoring and evaluation. In this regard, ASK championed for the carrying out of national census on PWAs for the first time in the history of Kenya and together with the Kenya National Bureau of Statistics, the organization is in the process of developing a stand-alone comprehensive census report (monograph) to aid this process. The initial nominal findings call for a scaling up of the NASSP program to cover at least seven thousand (7,000) PWAs currently left out. The 2019 Census Report indicates that there are 9.729 PWAs in Kenya. The prevalence ratio of Albinism in Kenya is 1:4890. This will be the first most comprehensive census report on PWAs globally, at a national scale.